Practical tools to help you manage your epilepsy – click here
Helping You Live Your Very Best Life
Every year, more than 7,000 people affected by epilepsy reach out to us for support. We understand that living with epilepsy can be challenging and, at times, isolating, but you don’t have to manage it on your own.
Our programs and services are about more than providing help in the moment. They are designed to build epilepsy capability at a broader level, strengthening understanding, confidence and competence across services and the workforce, reducing preventable risks, and ensuring that the needs and voices of people living with epilepsy inform how supports are designed and delivered.
Our highly skilled Epilepsy Nurses work alongside you to help you adjust to life with epilepsy, offering trusted guidance, reassurance and practical support when you need it most.
We provide clear, up‑to‑date information and personalised support services, tailored to individual needs, helping you feel informed, supported and included, now and into the future.
- Online Tools and Resources – Online Epilepsy Management Plans, educational materials and training, first aid videos and a quarterly newsletter.
- You can also discuss SUDEP and your safety risks with an epilepsy nurse or your doctor using the SUDEP and Seizure Safety Checklist
- Education and Training – We can provide epilepsy awareness and seizure first aid training. Training is provided online, via webinar or in-person in some locations, and can be tailored to meet individual needs. Education and training can include:
- an Online Academy course for individual self-paced learning
- group training for schools, disability organisations and the community
- family webinars
- workshops, seminars and webinars tailored to specific needs
- emergency medication training for giving emergency medication outside the hospital setting.
- First Aid Posters and Videos
- Quarterly Newsletter – E360 sign up and keep up to date with the latest news and research for epilepsy. Each issue we have feature articles about popular topics as well as answer your questions and list upcoming events and Epilepsy Action Australia developments.
- Epilepsy Products – Find information and where to go for seizure monitors and wearable technology designed to help keep you safe and alert others when you need assistance
- Online Communities – Connect with others through online support groups such as Epilepsy Action and Friends, Healthy Pregnancy with Epilepsy and others
Our aim is to deliver services that increase epilepsy awareness, understanding, knowledge and skills to help people living with epilepsy across Australia have the best quality of life possible.
To refer a client, use our Referral Form
Popular Services
Epilepsy Action has been providing our services for almost 70 years and we can be there with support for you when you need it. Some of our main areas of support and resourcing include the following:
National Epilepsy Line
A national telephone and telehealth service for all epilepsy related questions. Available Australia wide, your call will be answered by a specialist epilepsy nurse. Call 1300 37 45 37 (1300 EPILEPSY) or book your appointment here.
Seizure Smart Schools
Become a seizure certified school. Every school has a duty of care to provide a safe learning environment, and to ensure they meet the needs of every student.
Seizure Smart Schools is designed to increase awareness and knowledge about epilepsy and ensures that Epilepsy Management Plans are developed for all students with epilepsy
MyEpilepsyKey
MyEpilepsyKey, provides online access to vital information, resources and self-management tools. Click here to access MyEpilepsyKey.
Assistance and Advice
You may need written information, seizure management plans, medication advice, or sometimes just want to speak to a friendly voice who will understand what you are going through. That is what we are here for.
Advocacy and Consultancy
We represent the interests of those affected by epilepsy by advocating and lobbying the Australian Government for improvements in employment, education, health, transport, discrimination and other important issues. Epilepsy Action also provides a consultancy service to businesses and organisations that provide services to or work with people living with epilepsy.
Client Rights and Responsibilities
There are certain standards that you have the right to expect from Epilepsy Action Australia, and at the same time, as our client you have certain responsibilities to ensure your service is as effective as possible. Read more.
Child-Safe Environment
We are committed to providing a child-safe environment, prioritising the well-being and protection of every child in our care.
Seeking Support?
Call now on 1300 37 45 37 (1300 EPILEPSY) and have a chat to us about your situation and what support or assistance you would like. We are here to help.
